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2021 ALS Walk - 08.21.2021


OUR STORY

Event:South Dakota Walk
Date:Saturday, August 21, 2021
Registration @ 8:30 AM
Walk @ 10:00 AM
Team:Stormin Norman's Rockin Crew

Thank you for visiting our page and helping us reach our fundraising goal! Jeff started noticing symptoms in the summer of 2019. His right bicep muscle would twitch periodically and over time it got worse.  My sister is  a nurse and she was suspicious and asked him to see their primary care provider. His doctor said the muscle fasciculations were noticeable and he had a marked weakness in his right arm. It didn't take long to arrive at the diagnosis of ALS. The first test was an EMG (electromyography) which quickly came back suggestive of MND (motor neuron disease). They were able to get an appointment at Barrows with Dr. Ladha and within a week and a half they knew it was ALS but needed to hear it from a specialist. October 7th, 2019 is the day our lives would change. How do we tell our kids, family and friends? How long do we have together? Where do we want to travel? This can't be the correct diagnosis...we need a second and third opinion. All our thoughts were totally normal. This is really where the grieving process starts. Jeff started to see worsening muscle fasciculations in his right arm, moving to his forearm and hand then progressed to his left arm and chest. It progressed very rapidly. By February 2020 he was no longer able to safely drive his garbage truck for the City of Mesa which was a devastating realization for him. Life was changing rapidly now add the pandemic. We spent all of our time with family and friends, checking items off his bucket list including skydiving. We lived life in the moment doing the things Jeff loved, trying not to have any regrets. My sister's fondest memories are dancing with Jeff or listening to music and watching him laugh. He was always joking around and getting people to laugh. My advice is to love, laugh and live as long as possible. Don't let a moment go by without telling the people you love how much they have meant to you.  Jeff made videos for people while he was still able to talk...which became priceless after he was gone. Don't waste time, our last year and a half together passed so quickly. I wish I could get some time back.Jeff passed away on April 28, 2021 surrounded by his loving family and friends.


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